joseph's clubfoot journey - mama's experience8:00:00 AM
there is no doubt that joseph hasn't been through a great deal. from serial casting to being in boots and bar 23 hours a day, he's had to endure more than most babies in the first several months of his life. and though he hasn't shown much distress or comfort, it hasn't been the easiest ride. i am, however, really thankful at how much of a dream joseph has been in this journey. i read a lot of posts in the clubfoot community and clubfoot mama's groups on facebook where mama's are crying out for help because their baby can't find comfort or their baby has pressure sores or baby's foot wasn't fully corrected and on and on... thinking back, i rarely posted about an issue and though i am not trying to gloat, i am so thankful that it was a rarity for me. especially with what i am already going through.
i think there is always this constant level of worry with clubfoot parents. will my baby's foot be corrected? how will he adjust to serial casting? how will he take the tenotomy? they have to cut my baby's tendon?? will he do okay in the boots and bar, or will he scream bloody murder for the next three months? which bar will we get? is it the best kind? which shoes work best? should we have gotten adm's? how will he tolerate being in boots and bar for the first several years? will he relapse as an adult? did we choose the right doctor? why isn't he following the ponseti method?
the list goes on.
i have worried about almost all of these things and will continue to worry about them forever. i also wonder if our next baby will have clubfoot and feel slightly worried about that, too. though clubfoot can be fully corrected and treated perfectly, you really just never know. and you have to sit and wonder if you did everything you could to make sure they got the best treatment possible. that's why i feel so privileged to be a part of some clubfoot groups on facebook; i wouldn't survive without the outpouring love and support! of course, our family is very supportive, but to have people assure you and offer advice when they've been through it is always helpful. you always strive to do right by your children and having a support network can give you that added assurance whenever you need it.
besides the amazing support network that i have, there are a couple small things that help me get through the day, and that's showcasing my pride as a clubfoot mama with a couple staple jewelry pieces. i received them from the clubfoot store and have worn them practically every day since.